A unique database of information has been compiled and is managed by the School of Population Health at the University of Western Australia (under the custodianship of Professor Matthew Knuiman).
A collection of biological specimens from the surveys (blood samples, DNA) is maintained by the School of Pathology and Laboratory Medicine at the University of Western Australia (under the custodianship of Professor John Beilby).
The database and specimen collection have been recognized and relied upon by major international research centres as well as by researchers here in WA for over 40 years. The collection provides important information on common diseases and their relationships to risk factors, lifestyle and environmental variables.
The Busselton Population Medical Research Institute welcomes approaches from bona fide research workers for access to the accumulated data and biological specimens, and for participation in ongoing and new data collection activities, provided the proposed research does not conflict with current research projects and is done in collaboration with a BPMRI - affiliated researcher.
Investigators may apply for access to:
Types of access
For applications limited to (1) and (2) above, data may be made available in the form of completed statistical analyses, data summaries such as cross-tabulations, or a de-identified unit-record data file. Biological materials may be made available in the form of sera or DNA specimens, or new analyses on stored specimens may be arranged in collaboration with a BPRMI-affiliated researcher.
For applications involving (3) above, name-identified data may be provided or arrangements will be made for BPMRI-affiliated personnel to collect the additional data on behalf of the investigators.
Applications involving (4) must be compatible with the on-going program of research activities and the responsible investigator is usually required to become a member of the BPMRI.
Applications must be in writing and in accordance with the guidelines below. Lengthy submissions are not usually required. Data and biological materials will not be provided for approved projects until evidence is provided that the appropriate Instutional Ethics Committee (IEC) approval has been granted, and the responsible investigators have undertaken in writing to abide by stated conditions.
All applications are considered by the Busselton Population Medical Research Institute (BPMRI) Scientific Research Committee and, in general, access will be granted if:
Download and complete an Application Form here. Please ensure all headings are addressed in the application and all investigators have signed the "Undertakings by responsible investigators" section. An example of the information required is listed below:
Email completed applications to:
Chair of the BPMRI Scientific Committee, Professor Matthew Knuiman
Post: Busselton Population Medical Research Institute,
Department of Respiratory Medicine,
B-Block, Hospital Ave,
Sir Charles Gairdner Hospital,
Nedlands, WESTERN AUSTRALIA, 6009
There are two fees.
The first is paid to the UWA School of Population Health based on full-cost recovery for the programming and other costs associated with the planning, extraction and provision of the data.
The second is a contribution to the on-going storage, maintenance and other infrastructure costs of the Busselton Population Medical Research Institute and is to be paid to the BPMRI.
The latter fee depends upon the type and amount of data and biological materials required, the association of the investigators with the BPMRI program of activities, the intended use of the data, and whether the principal applicant is a postgraduate research student.
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